Algemene medische informatie

• United States National Library of Medicine (National Institutes of Health):  www.nlm.nih.gov
• Medicijngids:  www.ziekenhuis.nl/index.php?cat=medicijngids
• Medicijnenwijzer Ivan Wolffers: [dode joerel]  www.achmeahealth.nl/mednet/

Algemene adressen in Belgie, Vlaanderen

• Christelijke Mutualiteiten:  www.cm.be

Organisaties in Belgie, Vlaanderen

• Belgische Liga's voor Multiple Sclerose (Nationaal en Gemeenschappen):  www.ms-sep.be

Organisaties in de Verenigde Staten van Amerika

• National Institute of Neurological Disorders and Stroke (NINDS):  www.ninds.nih.gov
• National Multiple Sclerosis Society:
  •  www.nmss.org
  •  www.nationalmssociety.org
• Multiple Sclerosis Association of America:  www.msaa.com
• Multiple Sclerosis Foundation:  www.msfocus.org

Organisaties in andere landen en private initiatieven

• Multiple Sclerosis International Federation (UK):  www.msif.org
• Multiple Sclerosis Society (UK):  www.mssociety.org.uk
• Multiple Sclerosis Trust (UK):  www.msresearchtrust.org.uk
• Multiple Sclerosis Information Trust (UK):  www.mult-sclerosis.org
  Persoonlijk initiatief van een MS patient, Paul Jones
• Computer Literate Advocates for Multiple Sclerosis© (CLAMS):  www.clams.org
  "CLAMS is comprised of people who are provisionally diagnosed or diagnosed with Multiple Sclerosis (MS). It is Computer Information and Communication for People with MS, by People with MS"

Verplegingsinstellingen

• Nationaal Multiple Sclerose Centrum v.z.w.:  www.ms-centrum.be
• Consortium of Multiple Sclerosis Centers (CMSC) (USA):  www.mscare.org

Updates over oorzaken, symptomen, diagnose, verloop, behandeling

• Zie informatie op de webstekken van de diverse hoger vermelde MS organisaties.
• Van de U.S. National Library of Medicine, National Institutes of Health (NIH):
  • MedlinePlus: Multiple Sclerosis:  www.nlm.nih.gov/medlineplus/multiplesclerosis.html
• Van het National Institute of Neurological Disorders and Stroke (NINDS):
  • Multiple Sclerosis Information Page (samenvatting van "Hope Through Research" hieronder):  (lange url)
  • Multiple Sclerosis: Hope Through Research:  (lange url)
• Diagnose. Poser criteria
  • (Uit de webstek van Paul Jones):  www.mult-sclerosis.org/Posercriteria.html
• Verloop. Kurtzke schalen
  • The Kurtzke Functional Systems Scores (FSS) and Expanded Disability Status Scale (EDSS):  www.nationalmssociety.org/MUCS_FSS.asp
  • FSS Form (pdf):  (lange url)
  • EDSS Form (pdf):  www.nationalmssociety.org/pdf/research/EDSS_Form.pdf
  • (Uit de webstek van Paul Jones):  www.mult-sclerosis.org/expandeddisabilitystatusscale.html
• Behandeling.
  • Lawrence M. Samkoff. Multiple Sclerosis: Update on Treatment (Hospital Physician March 2002):  (lange url)
  • Dr. Jack Burks. Potential Treatments for SPMS and PPMS:  www.msaa.com/publications/spring03/ask_the_doctor.htm
  • Killestein, Joep; Polman, Chris H. Current trials in multiple sclerosis: established evidence and future hopes (Abstract):  (lange url)

Klinische Studies

• G.V. McDonnell, S.A. Hawkins. Clinical study of primary progressive multiple sclerosis in Northern Ireland, UK (J Neurol Neurosurg Psychiatry 1998;64:451-454 April):  jnnp.bmjjournals.com/cgi/content/full/64/4/451

Persoonlijke webstekken van ms-patienten

• Barb (Ladyau), Melbourne, Australie:  ladyau.tripod.com

Info over ITB (Intrathecal Baclofen)

• Barbara Ridley, Patrice Korth Rawlins. Intrathecal Baclofen Therapy: Ten Steps Towards Best Practice (Journal of Neuroscience Nursing Vol. 38 No. 2, April 2006):  www.aann.org/ce/pdf/0604c.pdf