Erik De Sonville's website » "Multiple Sclerosis" page

This page provides links to information useful for ms patients and their relatives.

Disclaimer: I provide all info below on a "best effort" basis (I'm not in the medical profession). The content of the referenced websites remains the responsibility of the respective authors.

General medical information

United States National Library of Medicine (National Institutes of Health): www.nlm.nih.gov
Medicijngids: www.ziekenhuis.nl/index.php?cat=medicijngids
Medicijnenwijzer Ivan Wolffers: [dead link] www.achmeahealth.nl/mednet/

General addresses in Belgium

Christelijke Mutualiteiten: www.cm.be

Organisations in Belgium

Belgische Liga's voor Multiple Sclerose (Nationaal en Gemeenschappen): www.ms-sep.be

Organisations in the U.S. of America

National Institute of Neurological Disorders and Stroke (NINDS): www.ninds.nih.gov
National Multiple Sclerosis Society:
- www.nmss.org
- www.nationalmssociety.org
Multiple Sclerosis Association of America: www.msaa.com
Multiple Sclerosis Foundation: www.msfocus.org

Organisations in other countries and private initiatives

Multiple Sclerosis International Federation (UK): www.msif.org
Multiple Sclerosis Society (UK): www.mssociety.org.uk
Multiple Sclerosis Trust (UK): www.msresearchtrust.org.uk
Multiple Sclerosis Information Trust (UK): www.mult-sclerosis.org
Personal initiative of an MS patient, Paul Jones
Computer Literate Advocates for Multiple Sclerosis© (CLAMS): www.clams.org
"CLAMS is comprised of people who are provisionally diagnosed or diagnosed with Multiple Sclerosis (MS). It is Computer Information and Communication for People with MS, by People with MS"

Care centres

Nationaal Multiple Sclerose Centrum v.z.w.: www.ms-centrum.be
Consortium of Multiple Sclerosis Centers (CMSC) (USA): www.mscare.org

Updates on causes, symptoms, diagnosis, course, treatment

See information on the websites of the various MS organisations listed higher.
From the U.S. National Library of Medicine, National Institutes of Health (NIH):
- MedlinePlus: Multiple Sclerosis: www.nlm.nih.gov/medlineplus/multiplesclerosis.html
From the National Institute of Neurological Disorders and Stroke (NINDS):
- Multiple Sclerosis Information Page (condensed from "Hope Through Research" hereunder): (long url)
- Multiple Sclerosis: Hope Through Research: (long url)
Diagnosis. Poser criteria
- (From the site of Paul Jones): www.mult-sclerosis.org/Posercriteria.html
Course. Kurtzke scales
- The Kurtzke Functional Systems Scores (FSS) and Expanded Disability Status Scale (EDSS): www.nationalmssociety.org/MUCS_FSS.asp
- FSS Form (pdf): (long url)
- EDSS Form (pdf): www.nationalmssociety.org/pdf/research/EDSS_Form.pdf
- (From the site of Paul Jones): www.mult-sclerosis.org/expandeddisabilitystatusscale.html
Treatment.
- Lawrence M. Samkoff. Multiple Sclerosis: Update on Treatment (Hospital Physician March 2002): (long url)
- Dr. Jack Burks. Potential Treatments for SPMS and PPMS: www.msaa.com/publications/spring03/ask_the_doctor.htm
- Killestein, Joep; Polman, Chris H. Current trials in multiple sclerosis: established evidence and future hopes (Abstract): (long url)

Clinical Studies

G.V. McDonnell, S.A. Hawkins. Clinical study of primary progressive multiple sclerosis in Northern Ireland, UK (J Neurol Neurosurg Psychiatry 1998;64:451-454 April): jnnp.bmjjournals.com/cgi/content/full/64/4/451

Personal websites of ms-patients

Barb (Ladyau), Melbourne, Australia: ladyau.tripod.com

Info o ITB (Intrathecal Baclofen)

Barbara Ridley, Patrice Korth Rawlins. Intrathecal Baclofen Therapy: Ten Steps Towards Best Practice (Journal of Neuroscience Nursing Vol. 38 No. 2, April 2006): www.aann.org/ce/pdf/0604c.pdf